![Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table](https://www.thesun.co.uk/wp-content/uploads/2018/01/nintchdbpict000381479107.jpg)
Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table
![Meet the 'butterfly' boy whose skin tears from the slightest touch – Splitting after playing with toys, eating and even being picked up by his parents - Storytrender Meet the 'butterfly' boy whose skin tears from the slightest touch – Splitting after playing with toys, eating and even being picked up by his parents - Storytrender](http://www.storytrender.com/wp-content/uploads/2018/05/5_CATERS_HAYDEN_ESSER_EB_06-768x1024.jpg)
Meet the 'butterfly' boy whose skin tears from the slightest touch – Splitting after playing with toys, eating and even being picked up by his parents - Storytrender
![Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life](https://img.huffingtonpost.com/asset/5d0198962500004e12e04f7c.jpeg?ops=scalefit_630_400_noupscale)
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
![Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life](https://img.huffingtonpost.com/asset/5d0198902400008c1789d665.jpeg?ops=1778_1000)
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
![Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online](https://i2-prod.mirror.co.uk/incoming/article11694741.ece/ALTERNATES/s615b/Butterfly-Boy-Teens-delicate-skin-falls-off.jpg)
Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online
![19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy 19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy](https://c8.alamy.com/comp/W82NY9/19-year-old-chinese-boy-mei-xiao-dubbed-the-butterfly-boy-who-suffers-from-a-genetic-skin-illness-is-pictured-at-home-in-chizhou-city-east-china-W82NY9.jpg)
19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy
![18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition 18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition](https://www.insideedition.com/sites/default/files/styles/video_1920x1080/public/images/2019-06/061219-butterflyskin-1280x720.jpg?h=c673cd1c)